Good Days and Hallucinations: Lewy Body Dementia Caregiver Stories

Inside this volume

Fifty first-person accounts describe caring for someone with Lewy body dementia, written by husbands, wives, sons, daughters, grandchildren, a sister, a brother, a daughter-in-law, an unmarried partner and an ex-wife. Many were first told it was old age, Parkinson's, secret drinking or late-onset schizophrenia. The carers range from a twenty-two-year-old in her grandparents' spare room to a husband of eighty-four, from Leeds and Houston to Pune, Lagos, Manila and Lahore. They write about visitors who stay for tea, an imaginary ginger cat, monkeys on a balcony, a wife who politely tells her husband he is not her husband, and a retired police officer back on shift in her dreams. Practical worries fill the pages: blood pressure that drops on standing, an injection in an emergency room that a husband says should never have been given, confusion after a hip operation, thickened water, pill boxes and patches, taking the car keys, telling teenage sons, caring for a mother in Taipei through a screen, and joining a research study. Several describe moving a parent or spouse into a care home. The harder accounts do not look away: carers close to breaking point, a promise that could not be kept, the last months of a husband's life, and waking at three in the morning after the caring ends.

Who it's for

For husbands, wives, children and grandchildren caring for someone with Lewy body dementia at home, from a distance or in a care home, and for nurses and friends trying to understand.

Format · Instant download · PDF & EPUB · Fifty first-person accounts · PDF: 281 pages

A collection of personal testimony, offered as companion reading — not medical advice.

• 50 single-author testimonies from real people
• A short, plain-language introduction to the topic
• Editor's note, contents page, and curated resource list
• Professional interior typesetting and an original cover

Every purchase includes a print-quality PDF (best for desktop, tablet, and printing) and a reflowable EPUB (best for Kindle, Apple Books, Kobo, and phones). Files are DRM-free. You can download both instantly from the order-confirmation screen, and we email them to your inbox as well, so your books are always within reach.